Cystic fibrosis (CF) is the most common inherited metabolic disease in Europe. More than 8,000 people in Germany are affected ...
The median predicted survival age of a patient with cystic fibrosis in 2020 to 2024 was 65 years, a 19-year increase from 2015 to 2019, according to data from the 2024 Cystic Fibrosis National ...
As a 40-year-old who lives with cystic fibrosis (CF), Zachary Schulz, PhD, EdS, MPH, is said to be among the reputed “last generation” of patients — those born before the advent of drugs that target ...
As an undergraduate student in the early 1980s, Marie Egan volunteered at the Children’s Hospital of Philadelphia. She’d often spend time in the hospital playrooms with children with serious illnesses ...
I lived for decades struggling to breathe, adapting my life around what I thought were severe allergies. Then I was finally diagnosed with cystic fibrosis. With proper treatment and perseverance, I’ve ...
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New gene editing approach offers hope for cystic fibrosis patients
UCLA researchers have developed a lipid nanoparticle-based gene-editing approach capable of inserting an entire healthy gene ...
Alyftrek is a type of medicine called a CFTR modulator. Alyftrek is designed to help make the broken CFTR protein in people with cystic fibrosis work better. Since different genetic mutations can ...
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