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At EBRP, we have one bold audacious goal: cure EB by 2030. In the process, we’re pioneering a model that can benefit the more than 400 million people affected by a rare disease. ​With the generous support of people like you, Tom Holland, and The Brothers Trust, EBRP achieved a record breaking year in 2023 for dollars raised and research funded. We raised more than $8 million to fund 18 innovative research projects across 5 countries. We're excited to continue this momentum in 2024. Learn more at
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